Case study - EDS & PoTS

By Martina Tierney, OT

Jess Hodges is 26 and lives in Lincolnshire, UK with her parents.  Jess suffers from various conditions that effect her everyday life, resulting in her having to spend a lot of time seated and in bed.  She has epilepsy, Ehlers-Danlos syndromes(EDS) and Postural Orthostatic Tachycardia (PoTS).  PoTS effects Jess’s heart rate meaning low blood pressure.  The symptoms are often relieved when lying down and so Jess spent hours lying in bed, unable to sit out as it was very uncomfortable for her. 

Jess’s mum Liz and dad Ted are Jess’s full time carers.  Liz says, “The chair has been amazing.  It has meant we have been able to get Jess out of bed for the first time in ages.”  Jess’s family booked a Seating Assessment to discover which chair would be most suitable for her needs.  

“Before Jess got her chair, her only option was to sit out in a wheelchair and it was too uncomfortable which resulted in her being in pain.  Now, I can see how relaxed she is.  She no longer has spasms and she is sitting so comfortably.  The chair is life changing and is already making a huge difference to her life,” said Liz.

chair is life changing and making a huge difference.”

Conor Lynch, the local Seating Specialist visited Jess and her family in their home to carry out a Seating Assessment.  He made recommendations for Jess and it was identified that she required a high degree of tilt in space to assist with her PoTS.  Jess’s low blood pressure means that it is more beneficial for her to have her legs elevated.  Conor recommended the Sorrento with a waterfall back and 45 degree tilt.  


Liz says, “I am so grateful to Conor.  He wasn’t just selling a chair, he was concerned about Jess and wanted to ensure he got the chair completely right for her.  When Conor came back to set the chair up, he was so good and I just want to thank him so much.”

Liz continues, “The chair is so easy to push around the house, it’s just fantastic.  Jess now sits and watches television with us, she really integrates with the family and this is something she was unable to do before.  I just wish we found the chair years ago.” Liz adds, “Jess loves her chair and she is so pleased with it.  She has got lovely patio doors in her bedroom so she is already talking about sitting by them in the summer looking outside!”

I am so pleased to hear we were able to help Jess and her family have a better quality of life. 


If you would like to speak with a Seating Specialist about the Sorrento chair or would like to organise a FREE, No Obligation Seating Assessment please contact us on 1300 001 050 or

*Note – the purpose of this blog is to give an overview of the product with some tips to consider on its use. This is not intended to be a substitute for professional or medical advice, diagnosis, prescription or treatment and does not constitute medical or other professional advice. For advice with your personal health or that of someone in your care, consult your doctor or appropriate medical professional.

* Note: The Seating Assessment carried out by the Seating Specialist is to provide information and advice on the product only and is not intended to be a substitute for professional or medical advice, diagnosis, prescription or treatment, and does not constitute medical or other professional advice. For diagnosis or treatment of any medical problem, consult your own doctor or physician.

Share on:
Join our mailing list to get practical tips and latest research delivered to your inbox!
Download Your Copy Of 'The Clinician's Seating Handbook'

This practical guide by world-renowned OT, Martina Tierney will assist you in the prescription and use of therapeutic seating for patients with various conditions. It’s the best place to start.

Download your free copy now.